Soul Dose

My struggle with illness And .... Journey into healing.

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Still Searching For An Answer

Posted at 04:08 PM on November 20, 2009

I’ve wanted to write a new post since yesterday, I tried to write a new post 4 times since yesterday but my health these days not only made it hard, my eyes made it worse. So what’s going on?  


 

It’s no big deal, I have been feeling weaker and weaker, then of course I started swelling up. I hate it when that happens because I know it means I have a hard time and it just started. My face is looking a little funny really, all swollen and ugly but my stomach is even funnier. Whenever my nephew sees it like this he walks in and pats it while the words “you’re having a baby too mom” roll out of his mouth. I laugh and sometimes I nod my head just to humour him and boy does he get excited. That kid is a big ball of sweet.


 

Yesterday I saw a doctor, not one of the doctors I usually see but a new one this time. I figured  adding one more cannot do any harm. I took all my records and when we got to his rooms we couldn’t get in, they are upstairs and you have to climb long stairs to reach him. There’s no lift, so we sat and tried to map out our plan but the only thing that seemed logical was to turn and go see another doctor……. As we were getting ready to leave the person who was with me decided to go talk to the doctor, and within 5 minutes the doctor and his nurse came to see me in  the car. I wasn’t sold on the idea but the pains in my body were screaming “at least get an injection and go to bed.”


 

When the doctor started flipping though my records and doing a lot of nodding. I closed my eyes and prayed he finds a test we haven’t taken or notices something out of the ordinary, I prayed for him to pick up something other doctors missed and when he made notes I thought yes he found something, but I was wrong.


 

He suggested I get lifted into his rooms while my wheelchair followed, it was hard on the person who did the lifting but I‘m thankful…… The examination was the  usual and even though I was and am still swollen, even though my stomach looks dark and big, even though my head is pounding and my eyes can barely see, his results came back as clean as all my results always come back and I put my hand on my eyes  and hid my tears once again……………………….. I’m asking and was asking for an answer, a miracle, a little red flag to follow up on but again was given clean results. Maybe this will sound silly but I’d prefer to know I have this and this, at this point I’d take whatever I can get.

 

Then something totally new happened, I’ll post about it tomorrow because I’m  not doing so good right now.


Stay Beautiful………..Cheers

 

 


Categories: These Sick Days, The Present.... How I Am Now, Feeling Down

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14 Comments

Reply Silindile Ntuli
09:32 PM on December 02, 2009
blissbait@gmail.com says...
Ah Silindile. I'm glad You were able to get up to the office and get some relief. Saying prayers and more prayers and more prayers for You. Much Love...

Bowing in thanks Dame Bliss.
Reply Silindile Ntuli
09:30 PM on December 02, 2009
skinny says...
Finding out what it is can make a huge difference. I will never forget the tears of joy when a doctor finally gave my brother a diagnosis after I had carted him all over to no avail. I hugged those poor men, those life-savers and life-changers, for if they had never diagnosed him, he may not be here today. ( He had an infectious disease which had settled into his bone) Diagnosing the problem is the problem...
We have to pull our resources together, think outside of the box, have faith and perseverance...

Your brother's condition sounds painful and serious, thank God for those life savers, angels who finally pinpointed the problem. I'm so happy for you all.
This story gives me hope that my answer is out there somewhere, packaged and waiting for me to come rip the cover off, grab it and run with it.
Reply blissbait@gmail.com
11:27 PM on November 28, 2009
Ah Silindile. I'm glad You were able to get up to the office and get some relief. Saying prayers and more prayers and more prayers for You. Much Love...
Reply skinny
03:20 PM on November 26, 2009
Finding out what it is can make a huge difference. I will never forget the tears of joy when a doctor finally gave my brother a diagnosis after I had carted him all over to no avail. I hugged those poor men, those life-savers and life-changers, for if they had never diagnosed him, he may not be here today. ( He had an infectious disease which had settled into his bone) Diagnosing the problem is the problem...
We have to pull our resources together, think outside of the box, have faith and perseverance...
Reply Silindile Ntuli
05:44 PM on November 22, 2009
Claire says...
Hi Sil, Hope you are feeling better. I'm concerned about the doctors you are seeing. What tests are they doing? Have you had brain scans? MRI, CAT, EEG etc. Have you been to specialists? Have you been tested for allergies, etc?

Hey Girl, I don't think I've had the EEG but I'll ask, I'm seeing specialists and trying to test everything known to men... Thanks for asking a question that ended up giving me hope, because now I have the EEG option, though I don't even know what that is, hahaha.
Reply Silindile Ntuli
05:40 PM on November 22, 2009
Mel says...
*sigh* I know the frustration of dealing with the symptoms and not knowing the disease/problem. Stick at it, keep showing up and asking/demanding for more help.

I did this battle for a year and a bit before being diagnosed (NOT to the same degree--but frustrating none the less). It was worth the chase and the work to get the answers. It didn't change the circumstances one iota, but just having the diagnosis, knowing what was truly wrong with me, somehow made it different.

Rest.
Take care--and know you're being prayed for.

That's also what I'm praying for, even if I don't get cured I'd like to know that I'm in this bed and can't even hold my own head straight because of such and such, right now I've accepted the illness but accepting that I've spent over 6 years living my life in bed because of something I don't understand is the hard part.
Thank you for the prayers, I'm glad you finally found out what was going on with you and you're focused on something you know.
Reply Silindile Ntuli
05:35 PM on November 22, 2009
Luisa Doraz says...
Have you had a brain MRI yet????? Thank you for your kind words while I was out sick. You are the best! I love your attitude. Do not give up the fight. Just keep all options open and move ahead! I am right with ya!

Yes I have had it but my wish is to have it again, thanks for asking... I'm glad you're feeling better, you annd sick shouldn't mix you're too fly for it.
You know when you say I'm right with you my heart smiles.
Reply Claire
07:58 AM on November 22, 2009
Hi Sil, Hope you are feeling better. I'm concerned about the doctors you are seeing. What tests are they doing? Have you had brain scans? MRI, CAT, EEG etc. Have you been to specialists? Have you been tested for allergies, etc?
Reply Mel
07:33 AM on November 21, 2009
*sigh* I know the frustration of dealing with the symptoms and not knowing the disease/problem. Stick at it, keep showing up and asking/demanding for more help.

I did this battle for a year and a bit before being diagnosed (NOT to the same degree--but frustrating none the less). It was worth the chase and the work to get the answers. It didn't change the circumstances one iota, but just having the diagnosis, knowing what was truly wrong with me, somehow made it different.

Rest.
Take care--and know you're being prayed for.
Reply Luisa Doraz
09:48 PM on November 20, 2009
Have you had a brain MRI yet????? Thank you for your kind words while I was out sick. You are the best! I love your attitude. Do not give up the fight. Just keep all options open and move ahead! I am right with ya!
Reply Silindile Ntuli
07:42 PM on November 20, 2009
Beverly says...
so nice to meet you and thank you for stopping in and visiting my sweet Noah. I look forward to reading more about you. Praying for you and sending peace full thoughts!

He has me hooked..... Thanks for stopping by.
Reply Silindile Ntuli
07:41 PM on November 20, 2009
Jaymie says...
If I could I would send a flash mob healing dance to your front door. Be well friend, be well.

As long as you bring the first girl in front.
Reply Jaymie
07:37 PM on November 20, 2009
If I could I would send a flash mob healing dance to your front door. Be well friend, be well.
Reply Beverly
07:33 PM on November 20, 2009
so nice to meet you and thank you for stopping in and visiting my sweet Noah. I look forward to reading more about you. Praying for you and sending peace full thoughts!

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